Saturday, October 27, 2012

Home again, home again!

My baby man was able to come home Thursday. He was one sick little dude. Praise the good Lord that we overcame another hospital stay and that Hew is feeling much, much better. It is so good to all be under one roof again. Thank you for praying for him (and us).

Sunday, October 21, 2012

Hospital....again

We are in the hospital again with Hew-man. He came down with a nasty stomach bug and we took him to the ER for fear of dehydration. Some out of whack labs bought us a one way ticket up to one of the floors and here we sit. He has IV fluids going. Bless his baby heart he has been stuck so much. Please keep him in your prayers.

This is Hew at the doctor Thursday before the bug hit that night. :(

Monday, October 15, 2012

Pregnancy & Infant Loss

Today is pregnancy and infant loss day. It breaks my heart that such a day has to exist but what a joy that we are all taking a step towards making miscarriage and loss a little less taboo.

On December 1st, 2011 we said hello and goodbye to our beautiful 1lb 2oz Hazel. Born at 22 weeks 4 days she was just too early to survive. We were able to hold and love on her for the few minutes that she lived on this earth. And while we have hard days, we find peace in knowing that she isn't struggling or hurting. That makes my momma heart a little happy to know that one of my babies will never know suffering, pain or heartache.

I plan to write more about her on her birthday but wanted to acknowledge a day that will forever serve as a reminder to pray for all those who have and will suffer pregnancy and infant loss. I wonder often what she would be like. What she would be doing. Would she look like Ava and Hollyn or would she look like Hew? My heart longs to know these things. It's something we will deal with from now on. It's our new normal.

My family and I are praying for those that already share our same heartache and for those whose hearts will be affected. Will you join me in praying?

Tuesday, October 9, 2012

Bad Blogger and Appointments

Yeah, so I dropped the blogging ball.  I’m sorry.  Life has been happening and I’ve been making sure I’m present to soak it all up.  These moments won’t last forever and I want to be in the moment and not just hearing about them.

We’ve has several appointments for the babies.  The main one being Hew’s pulmonology appointment a few weeks back.  They placed the pulse oximeter on him while he was on and off oxygen (he’s only on one quarter liter).  He was able to maintain his sats in the high 90’s with and without oxygen.  We got the go ahead to wean his diuretic and then his oxygen.  When the time came to start with the oxygen wean he was still dealing with his congestion (we’ve been dealing with buckets of snotty here).  We called Dr. L and he gave the go ahead to wait until the cold passes to begin the wean.  He has still been holding his sats good but we don’t want anything to wear his little body out so waiting is best. 

And then, yesterday Hollyn had a follow up liver ultrasound from when she was discharged from the NICU.  We got the dreaded “can you wait and let me see if the Dr. thinks I have everything he needs”, which translates to I saw something fishy so let me go get the doctor.  The doctor came in and asked a bunch of questions and did his own ultrasound.  He didn’t give much insight but finally said everything looked ok and we were free to go.  I’m trusting the good Lord that this is the case and I am prayerful that we will get the same response from our Pediatrician.  Pray with us will you?
And I'm praising God for this healthy blessing.  She is such a big help with the babies and she adores them (and they LOVE her).